Videos & Voices

Joyce, an actual Galafold patient.

Real Patients, Real Stories

Hear from members of the Galafold® (migalastat) community about their journeys to diagnosis and finding different ways to fit Galafold into their individual lifestyles.

Rebecca: The Self-Advocate

Taking charge of her Fabry by speaking up for herself.

Anthony: The Optimist

Discovering his drive and staying focused on what he’s passionate about.

Veronica: The Busy Parent

Taking the time to find the treatment and the care team that best complement her.

Paul: The Determined

Persevering through misdiagnoses and healthcare providers who weren’t the right fit.

Joyce: The Fabry Matriarch

Letting the memories of her family help guide her through life as a grandmother today.

Alex: One of the First Galafold Patients

Getting a second degree and caring for his family, all while taking part in the first clinical trial for the only pill for Fabry.

Additional Helpful Videos

Learn About Fabry and Galafold With a Genetic Counselor

How Galafold may be right for you Listen to genetic counselor Carolyn Serbinski, MS discuss topics including the effects of Fabry, and Galafold as a treatment option for adults with an amenable GLA variant.

A Journey Through Fabry and Galafold

How Galafold works Watch how Galafold acts as a pharmacological chaperone if you have an amenable GLA gene variant.

How to Remove and Take Galafold

A step-by-step guide Follow along with these clear instructions on how to remove a Galafold capsule from its packaging and how to track your pill times.

INDICATION AND IMPORTANT SAFETY INFORMATION

Before taking Galafold® (migalastat), tell your healthcare provider about all of your medical conditions, including if you:

  • have kidney problems.
  • are pregnant or plan to become pregnant. It is not known if Galafold will harm your unborn baby.
  • have kidney problems.
  • are pregnant or plan to become pregnant. It is not known if Galafold will harm your unborn baby.
  • are breastfeeding or plan to breastfeed. Galafold may pass into breast milk. Talk to your healthcare provider
    about the best way to feed your baby if you take Galafold.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

What are the possible side effects of Galafold?

The most common side effects of Galafold include headache, stuffy or runny nose and sore throat, urinary tract infection, nausea, and fever.

These are not all the possible side effects of Galafold. Call your healthcare provider for medical advice about side effects.

What is Galafold?

Galafold is a prescription medicine used to treat adults with Fabry disease who have a certain genetic change (variant) in the galactosidase alpha gene (GLA) that is responsive (amenable) to Galafold.

It is not known if Galafold is safe and effective in children.

You may report side effects to FDA at 1-800-FDA-1088. You may also report side effects to Amicus Therapeutics at 1-877-4AMICUS.

Please click here for Full Prescribing Information, including Patient Information and Instructions for Use.

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